Further information on FTD can be found at www.theaftd.org With this blog, I am hoping to offer information and insight into dealing with FTD, whether you have the disease, are a caregiver for someone who does or if you know or love someone who has the disease and want to learn more about it. FTD may be taking away my father, but I am gaining a great deal of respect for my mother for keeping her promise to … Frontotemporal dementia (FTD) is a group of disorders that result from damage to the frontal and temporal lobes of the brain. Tips for managing aggressive behaviour in FTD . You’ve probably heard of Alzheimer's disease. Fronto Temporal Lobe Degeneration - A different kind of dementia, most often called FTD. So family members shouldn't take their loved one’s behaviors personally. I hope this blog helps you to understand. All moderators are available to be contacted about any group issue or concern. Coping with FTD can be scary, frustrating, and embarrassing for the patient and family members. Please know that in order to maintain a healthy, honest, and open dialogue this information will be shared amongst moderators. The grieving begins long before physical death. The average time between diagnosis and death is between four and ten years. FTD is a form of early-onset dementia that affects the executive decision-making part of the brain. The NY Times recent article here is a pretty good read. FTD is the most common cause of dementia in people under the age of 50. Such groups allow caregivers to learn coping strategies and share feelings with others in the same position. Families need to care for their own well-being, while making sure that their loved one is treated with dignity and respect. Some symptoms can’t be controlled. Long-Term Care for People with FTD For many caregivers, there comes a point when they can no longer take care of the person with a frontotemporal disorder without help. Putting One Foot In Front of the Other is author Nancy Carlson’s candid blog post about coping with her husband’s diagnosis of frontotemporal degeneration (FTD). It is a common misconception that dementia is a condition exclusively of old age. If FTD is diagnosed early in the course of the disease, doctors can prescribe medications and help families prepare and cope with symptoms. Behaviours exhibited by people with FTD can be unpredictable and distressing. Depending on the location of the damage, the disorder causes changes in social behavior, personality, and/or loss of language skills. The archives will be open to all members to read. The condition may last from three to 17 years before death, with an average duration of eight years after diagnosis. 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